Subject Not Yet Beaten to Death
Surprise! The comments from the Chronic Lyme Disease community continue, pleading for "dialogue":
All I can say now as I read the blog dated March 10th 'Growing a Thicker Skin' is that I must admit that I am beyond disappointed, dismayed and frustrated by the response of Dr. Dino and the other medical bloggers to the concerns of patients with Lyme Disease and Lyme-like illness.There is no "God of Science." As a non-scientist, you are being manipulated by those who promulgate fake "science" regarding persistent Lyme infection to explain vague symptoms in the absence of objective proof.
Personally I feel that there is more than enough science behind the existence and persistence of the spirochetal bacteria that causes this disease including such technologies as dark-field microscopy.
However, I am not a scientist and so once again as a patient I must bow to the God of science. There is nothing more to be said. I must accept that Dr. Dino, myself and my Healingwell friends can only agree to disagree.
I am sorry Dr. Dino but for you this means nothing more than one slightly perturbing everning and a fresh, bright start in the morning.
For me, my friends on Healingwell and other suffering patients it means waking up to yet another day of constant pain or fatigue. Another day without answers, without an effective cure, without healing and most of all without hope.
I had hope that lines of communication would be opened, that true dialogue could exist.
My point is that you -- and suffering patients like you and your friends at HealingWell -- are being disserved by LLMDs and others who claim that the answer to your problems is "chronic Lyme disease" (or "reactivated mono" or "heavy metal toxicity") and that pumping you full of antibiotics for months on end (or subjecting you to "detoxification" or "chelation therapy") is going to help.
I think these were key words:
"For me, my friends on Healingwell and other suffering patients it means waking up to yet another day of constant pain or fatigue. Another day without answers, without an effective cure, without healing and most of all without hope."
I believe a good part of your suffering is the lack of an answer, and as such, anyone who claims to have one for you (like your warm, caring, understanding LLMD) becomes a savior. I wonder if by providing that kind of comfort, understanding, respect and empathy (but not the antibiotics) I could produce similar results for patients with similar symptoms.